September

Saturday 10th October, 10am to 4pm

Sunday 11th October, 10am to 2pm

NO TRAVEL NEEDED

NO TRAVEL NEEDED

GUEST EXPERTS

BREAKOUT SESSIONS

LEARN & NETWORK

LEARN & NETWORK




About the Event

Metabolic Support UK’s very first virtual conference offers attendees an interactive 3D environment with informative webinars, an exhibition hall and interactive, disorder-specific breakout sessions. You can enjoy the benefits of networking and contribute to live discussions, from the comfort of your own home. Don’t miss the chance to listen to our key speakers sharing their experiences and perspectives on the importance of patient involvement.

Highlights of our 2020 annual conference include:


The theme of this year’s conference is: Patient Involvement: Creating Patient Leaders. Our webinars and breakout sessions will focus on the importance of patient involvement, and aim to empower patients and families from our IMD community to get involved and become patient leaders.

You will discover the many ways in which you can become a patient expert and the impact this can have. You will hear from our industry experts about the importance of patient involvement in the development of treatments and research. Our patient expert will share his experiences of joining an advisory council and raising awareness about his own condition. Finally our concluding webinar on day two, will reflect on the impact of covid-19 on the patient community, and discuss how specialist services and Metabolic Support UK are adjusting to the new normal.

To join the event, click the register button above and complete the short registration form.

We look forward to seeing you in October!

Agenda


Saturday 10th October

10:00am – 11:30am

Webinar 1: The Importance of Patient Involvement

11:45am – 13:45pm

Patient Community Sessions:

  • Urea Cycle Disorders
  • Fatty Acid Oxidation Disorders
  • Hypophosphatasia
14:00pm – 16:00pm

Patient Community Sessions:

  • Young People
  • Cystinosis

Sunday 11th October

10:00am – 11:30am

Webinar 2: Adjusting to the new normal post Covid-19

11:45am – 13:45pm

Patient Community Sessions:

  • Pyruvate Kinase Deficiency
  • Methylmalonic Aciduria and Propionic Aciduria
  • X-Linked Hypophosphatemia

Frequently Asked Questions

Absolutely nothing! This conference is free to attend.
Your login details will be emailed to you ahead of the event. You can use these details to access the online event.
Yes, all the webinars will be recorded and will be available on our YouTube channel after the event.
Send an email to msuk2020@getvfairs.io for any technical assistance.
When registering to attend the event you will be asked to select the breakout session you wish to attend. We will receive these details and automatically register you to the session before the event.
If you are worried or concerned about an issue related to your condition, our team is here to help and support you. Please contact the team at contact@metabolicsupportuk.org
Due to the Pandemic, large gatherings are currently not permitted. The safety and wellness of our patient community are our priority and it is not safe for us to hold an in-person event this year. We hope this online event, will bring the same networking and learning opportunities as our previous events and look forward to hearing your feedback.
If you have a question which is not answered above, please contact us at contact@metabolicsupportuk.org.